View source for Talk:Fibromyalgia

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== Need for scientific update ==

The entry is based on many old papers and is not up to date regarding recent academic findings. Is there a way to flag this? [[User:SigTif|SigTif]] ([[User talk:SigTif|talk]]) 06:26, 10 August 2021 (UTC)
:Consider it flagged. Have you details of the recent academic findings? We cant do anything without them. -[[User:Roxy the dog|'''Roxy''' <small> the grumpy dog</small>.]] [[User talk:Roxy the dog|'''wooF''']] 06:33, 10 August 2021 (UTC)
::There are several papers revolving around (IgG) autoimmunity, this should be added if someone wants to do it. Till now, the article mentions none of it.
::E.g. https://pubmed.ncbi.nlm.nih.gov/34196305/, papers are usually Goebel et al or Karolinska.
::There is even a Phase 2 study with an IgG reducer, cf. https://clinicaltrials.gov/study/NCT05643794. [[Special:Contributions/2003:EC:6F19:2200:A0EF:9214:1BBE:D39A|2003:EC:6F19:2200:A0EF:9214:1BBE:D39A]] ([[User talk:2003:EC:6F19:2200:A0EF:9214:1BBE:D39A|talk]]) 18:38, 13 July 2024 (UTC)
:::That Goebel paper is important. Do you know if it's been discussed in a review paper? I know it's replicated in people with pain in [[long covid]], but is it also replicated in fibro? Wikipedia typically doesn't use primary sources per [[WP:medrs]], and relies on reviews instead. [[User:Femke|—Femke 🐦]] ([[User talk:Femke|talk]]) 11:08, 14 July 2024 (UTC)
::::In the paper already mentioned, there is a second cohort already. They checked with Walton Center first, then with a totally different Karolinska cohort. There is also follow-up, eg. https://pubmed.ncbi.nlm.nih.gov/37683961/ from Karolinska. In my mind there was another british group / cohort but not sure. 
::::Regarding reviews I'm not aware, only for SFN I think I've read one. I know the Wikipedia guideline, but imo it doesn't really make sense in the context of "unexplained" or "psychosomatized" diseases. Reviews are often from a biased set of "experts", where there are different "groups". E.g. very low to no evidence (opinion) "reviews" of psychosomatic proponents (mostly with W.Häuser for finding it online) vs SFN proponent "reviews". Reviews are also not independent, eg psychosomatic proponents reviewing their own group's papers. Everything needs to be judged for quality, also reviews. For example, Cochrane has published a very flawed review on ME/CFS which they acknowledged. 
::::Within that regard I also have a problem with WP:medrs advocate for "academic books", that is certainly not automatically better than a paper published by respected authors in a prestigious journal.
::::There are some "consensus" papers from groups and workshops, e.g. https://pubmed.ncbi.nlm.nih.gov/38365860/ or https://pubmed.ncbi.nlm.nih.gov/38873615/.
::::In the end it's a balancing act, WP:medrs works better for well-defined diseases. [[Special:Contributions/2003:EC:6F19:2200:4278:4F99:30C6:C78D|2003:EC:6F19:2200:4278:4F99:30C6:C78D]] ([[User talk:2003:EC:6F19:2200:4278:4F99:30C6:C78D|talk]]) 19:28, 1 August 2024 (UTC)

Agreed. More recent papers are pointing to the existence of FM without paired tender points. The idea is over 30 years old and possibly very wrong. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6016048/ [[Special:Contributions/50.46.9.58|50.46.9.58]] ([[User talk:50.46.9.58|talk]]) 00:44, 26 December 2021 (UTC)

I wonder whether female sex by itself is a risk factor for fibromyalgia, or just makes someone more likely to be abused (which in turn makes them 3 times more likely to get fibromyalgia). Calling sex a risk factor without controlled evidence looks suspect to me. [[Special:Contributions/2601:441:4900:A6E0:6CEF:A62F:D2DB:454|2601:441:4900:A6E0:6CEF:A62F:D2DB:454]] ([[User talk:2601:441:4900:A6E0:6CEF:A62F:D2DB:454|talk]]) 23:50, 13 April 2023 (UTC)

==Wiki Education assignment: Science Writing==
{{dashboard.wikiedu.org assignment | course = Wikipedia:Wiki_Ed/University_of_Wisconsin-Eau_Claire/Science_Writing_(Spring) | assignments = [[User:Alea m12|Alea m12]] | reviewers = [[User:Smcc24|Smcc24]] | start_date = 2024-01-30 | end_date = 2024-05-10 }}

<span class="wikied-assignment" style="font-size:85%;">— Assignment last updated by [[User:Smcc24|Smcc24]] ([[User talk:Smcc24|talk]]) 15:10, 2 April 2024 (UTC)</span>

== Add A Fact: "Managing fibromyalgia symptoms" ==

I found a fact that might belong in this article. See the quote below
<blockquote>
There is no cure for fibromyalgia, but doctors and other health care providers can help manage and treat the symptoms. Treatment typically involves a combination of exercise or other movement therapies, psychological and behavioral therapy, and medications.
</blockquote>
The fact comes from the following source:
: https://www.niams.nih.gov/health-topics/fibromyalgia

Here is a wikitext snippet to use as a reference:
 <nowiki> {{Cite web |title=Fibromyalgia |url=https://www.niams.nih.gov/health-topics/fibromyalgia |website=National Institute of Arthritis and Musculoskeletal and Skin Diseases |date=2017-04-05 |access-date=2024-11-21 |language=en |first=NIAMS Science Communications and Outreach |last=Branch |quote=There is no cure for fibromyalgia, but doctors and other health care providers can help manage and treat the symptoms. Treatment typically involves a combination of exercise or other movement therapies, psychological and behavioral therapy, and medications.}} </nowiki>
Additional comments from user: I am trying out the new chrome extension to see if this information can be incorporated under prognosis,

This post was generated using the [[:meta:Future_Audiences/Experiment:Add_a_Fact|Add A Fact]] browser extension.

[[User:SigTif|SigTif]] ([[User talk:SigTif|talk]]) 09:19, 21 November 2024 (UTC)

== Research ==

There needd to be a research section for ongoing trials and clinical studies. Many doctors are starting to see how fibro ties into autoimmune dysfunction conditions. Look into the kings college london and their findings. See moregooddays' 200+ symptom list of fibromyalgia to more accurately depict what patients are experiencing. There is so much more to it than what is on this page. [[Special:Contributions/2604:3D09:617C:300:A147:998E:3038:E6A5|2604:3D09:617C:300:A147:998E:3038:E6A5]] ([[User talk:2604:3D09:617C:300:A147:998E:3038:E6A5|talk]]) 08:34, 20 February 2025 (UTC)
: Hello and thanks for raising this. This article is in need of an update, absolutely. Anything medical on Wikipedia needs to be sourced to [[WP:MEDRS]] sourcing. That is: clinical guidelines or review papers that have come out in the last 5 years. Do you know of any that describe fibromyalgia research? [[User:Femke|—Femke 🐦]] ([[User talk:Femke|talk]]) 08:37, 20 February 2025 (UTC)

== Sourcing concerns ==

This article has recently seen large-scale changes from {{u|Asto77}}. I am very concerned at the constant addition of unreliable, non-[[WP:MEDRS]] sources for biomedical content (e.g.[https://en.wikipedia.org/w/index.php?title=Fibromyalgia&curid=318049&diff=1281249058&oldid=1281248972]). {{u|Asto77}}: have you an explanation? [[User:Bon courage|Bon courage]] ([[User talk:Bon courage|talk]]) 07:09, 19 March 2025 (UTC)

:Apologies. At heart I feel WP:MEDRS is unnecessarily conservative, and produces over-safe articles that (a) are less valuable and interesting than they could be (readers are adults), and (b) positions Wikipedia weakly in the coming survival battle vs AI (e.g.  Grok DeepSearch). (See [[WP:MEDRS]] talk page). But I understand those are the current wiki rules, so I'll desist. Go well. [[User:Asto77|Asto77]] ([[User talk:Asto77|talk]]) 23:52, 20 March 2025 (UTC)